As you can see from the pictures, Lily has an ng (nasogastric tube) which goes right into her belly which we use for feedings. A few weeks ago she started to have increased difficulties with feeding, so we earned ourself the tube, unfortunately. But it feels better to know that she is gaining weight and getting what she needs, so she can be a healthy, growing girl.
This is how she felt about her ng tube this morning: not happy!
She has seemed to have a rougher time in the morning because we've been taking the tube out at night to help her get good rest and then put it back in the morning. She is mad for awhile and then it seems by afternoon she is in a better mood. It's hard seeing our content, happy girl in a bad mood. But there is relief coming-we are going to be headed to Iowa City next week to have a g-tube placed. No more discomfort and a darn tube in her nose/throat!
Grandpa and Grandma Schwarck
I think they might like her....just a little bit!
To end this post for the night, Levi and I would like to extend a heartfelt thank you to all for the wonderful support and prayers offered up on Lily and our behalf. We were overwhelmed with posts, messages, texts, etc. and are so thankful for all the great friends and family we have to help us through this time of trial. Thank you, thank you, thank you. It makes walking this road much easier knowing we have so many people behind us encouraging us! It took us awhile to share this with everyone and open up about it, but I think it's safe to say we are both very glad we did and appreciate all the love we've received!